In general, there will be four types of data collected: Health screening test results, physical measurements, information from questionnaires, and genomic data from sequencing.

The collective data garnered from the MyGenom project will be a cornerstone for the implementation of Precision Medicine for the benefit of Malaysian citizens. This will be achieved through better understanding of the population’s unique genetic diversity and how it relates to manifestation of human health.

The data from the MyGenom project will be managed by a Data Access Committee, which will ensure that the information is shared and accessed responsibly. Researchers who have the necessary approvals can use this data for their studies, but it will be shared confidentially, ensuring the privacy and rights of the MyGenom participants.

Personal data will be anonymized to protect each person’s privacy. Tracing the information back to the individual will not be accessible except for a limited number of investigators. All genomic and phenotypic (physical characteristics, blood results, etc) data will be stored in secure databases in NIBM and NIH.

Data from the MyGenom project will be kept safe with strong security measures to protect privacy and ensure data integrity. This data will be stored in mirror sites in an on-premise database (MGVI-NIBM) & in the cloud (NIH). Among the security measures are the mirror site back-ups, anonymization of personal identifiers, encryption and password protection, and firewall security systems.

Data from the MyGenom project may be shared with other researchers and investigators, provided explicit approval is obtained from the MyGenom Data Access Committee. As part of the approval process, researchers must ensure and acknowledge that the data will not be used in any way that could lead to discrimination.

Blood samples will stored for at least 10 years in the NIH Biobank. The data and information are projected to be stored in perpetuity for the long-term benefit of the country